Search found 15 matches

by auburntiger
Sat Jan 29, 2011 9:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Patient Reports As Evidence
Replies: 9
Views: 3444

Mark, You are on the mark. Patients Like Me founder, Jamie Heywood, has been able to predict ahead of published reports when a medication/procedure is working/not working for majority of patients due to the patients updating their responses to said treatment. Unfortunately, there were attacks by a f...
by auburntiger
Fri Jan 28, 2011 10:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Vit D3>125nmol/L (50ng/ml) in blood. Goal for pwMS
Replies: 821
Views: 172625

Jackie, Since you haven't had a response, I'm going to post with second hand knowledge. There is a site called Patients Like Me for MS where there is a thread on vitamin D with thousands of posts. When perusing the thread, many have spoken about the liquid drops raising their doctor tested vitamin D...
by auburntiger
Sat Jan 01, 2011 3:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani ASKS a question
Replies: 109
Views: 31817

[/b]Head Pressure (not a headache)
Vision color dimness
by auburntiger
Sat Oct 23, 2010 12:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Blood Pressure
Replies: 5
Views: 2631

Blood Pressure

I know that many with MS have low blood pressure. For those that do and had the liberation procedure, did you have any noticeable change after the procedure. For the first fifteen years with MS, my blood pressure was always about 89-90 over 58-60. Even during 2 pregnancy. Because I exercised 5 days ...
by auburntiger
Thu Oct 21, 2010 8:13 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Interrupted - What a pain in the neck! (5 wk update Pg 3)
Replies: 51
Views: 11197

I had an intermittent, sharp stabbing pain (side of neck) in the second week after angioplasty. I've also had an intermittent tightness in neck during weeks 2 and 3 after angioplasty. No swelling and soreness only for 2 days after angioplasty. My thoughts with this immediately went to the possibilit...
by auburntiger
Sun Oct 10, 2010 11:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New oral MS drug to cost $50,000 ( canadian ) per year
Replies: 9
Views: 3617

Jugular mentioned that the current MS drugs will be coming off patent in the near future. This is correct. However, the cost to setup/manufacture a generic bio-engineered drug to mirror those out there is not as simple as that seen with other medications so may not translate into as large a discount...
by auburntiger
Sat Oct 09, 2010 8:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New oral MS drug to cost $50,000 ( canadian ) per year
Replies: 9
Views: 3617

Thanks for sharing Gary! Can't believe they are commanding this kind of retail price for a medication that is not even bio-engineered. The thought process has to be that they feel people will migrate because they want to be off the shots.
by auburntiger
Mon Oct 04, 2010 3:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: BLOOD THINNER info please
Replies: 7
Views: 2857

Heparin given during procedure. Lovenox injections given immediately after procedure, following morning and following night. Aspirin 325 mg/daily after that. Balloon angioplasty only.
by auburntiger
Sat Oct 02, 2010 2:26 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2659308

Dr. S. I have recently had my balloon angioplasty of the RIJV and LIJV with one of the valves being abnormal. Azygos was noted as ok. One of the notations in the findings documentation is that the lumbar vein is abnormal due to being enlarged. Is there any explanation that goes along with this type ...
by auburntiger
Mon Sep 27, 2010 1:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Treatment in Rhode Island
Replies: 4
Views: 2603

What do you want to know?
by auburntiger
Sat Sep 18, 2010 4:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Other veins involved in CCSVI??
Replies: 11
Views: 3446

Can the doctors treat these other veins-iliac, lumbar, vertebral? I haven't seen patients update about getting these treated only looked at in testing.

What is the real story?
by auburntiger
Sat Sep 18, 2010 6:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Anyone on aspirin only after balloon angio (no stents)?
Replies: 9
Views: 3071

Thank you for the responses!!
by auburntiger
Fri Sep 17, 2010 12:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Blood thinners
Replies: 8
Views: 3318

Ines, Thanks for responding with your husband's experience and congrats for receiving the treatment. I think I had read somewhere about aspirin for arterial blood too. However, I'd think if it provides anticoagulant properties this would work for both the arteries and veins. Did the doctor talk to y...
by auburntiger
Fri Sep 17, 2010 12:51 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Anyone on aspirin only after balloon angio (no stents)?
Replies: 9
Views: 3071

Anyone on aspirin only after balloon angio (no stents)?

For those that have been through balloon angioplasty, I am seeing a real difference regarding the type and longevity of medication prescribed after the procedure. (Plavix, Coumadin, aspirin, War...) Is there anyone who is sensitive to medication that was put on an aspirin regime only? If yes, what w...
by auburntiger
Fri Sep 17, 2010 11:32 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Blood thinners
Replies: 8
Views: 3318

Anyone on aspirin only after balloon angio (no stents)?

For those that have been through balloon angioplasty, I am seeing a real difference regarding the type and longevity of medication prescribed after the procedure. (Plavix, Coumadin, aspirin, War...) Is there anyone who is sensitive to medication that was put on an aspirin regime only? If yes, what w...

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