Tell us what you are using to treat your MS-- and how you are doing.
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Vitamin D
Replies: 20
by
SandyK » Mon Jun 21, 2010 8:23 pm
First post
Hi. My 19 year old daughter just had a blood test and it was found that she was severely deficient in vit D. Her doctor put her on 50,000 IU once a...
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hi mine is 1,000,000 IU/gm drops and it comes from the compounding pharmacist. used to be over the counter but is now a prescription item. this...
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Last post by jimmylegs
Thu Dec 17, 2015 8:37 pm
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Suggestions for dosing/regimen
Replies: 4
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kw202 » Tue Dec 15, 2015 2:03 pm
First post
Hello!
I'm brand new, awaiting a MS dx, but likely won't happen until early next month.
Meanwhile, I'm taking control of what I can do myself. For...
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Thanks for this - I think it seems really promising, I just wish there was a US-certified doctor giving these treatments...
Hi kw202,
There is...
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- 3551 Views
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Last post by AntonioBR
Wed Dec 16, 2015 2:01 pm
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Vitamin D Studies and board members
Replies: 24
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Markd » Thu Jun 17, 2010 11:27 am
First post
Diagnosed 5 years ago with RRMS been a Rebif addict ever since. So far I have been really lucky.... Back when the Vitamin D info was publicized my GP...
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Diagnosed 5 years ago with RRMS been a Rebif addict ever since. So far I have been really lucky.... Back when the Vitamin D info was publicized my GP...
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- 11586 Views
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Last post by AntonioBR
Sat Dec 12, 2015 4:59 pm
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Need supplement help/ suggestions !
Replies: 20
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Helleborus » Tue Jan 21, 2014 4:36 am
First post
Hello from Norway!
Im newly diagnosed ( 1 year) and Im trying to recover from my attack last year.
Iv been reading a lot on this forum and I...
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Hello from Norway!
Im newly diagnosed ( 1 year) and Im trying to recover from my attack last year.
Iv been reading a lot on this forum and I...
- 20 Replies
- 8563 Views
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Last post by AntonioBR
Sat Dec 12, 2015 12:55 pm
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Megadosing b-12. Pee not turning bright yellow.
Replies: 12
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ShirleyTemple » Tue Nov 10, 2015 1:11 pm
First post
(Right off the bat, i havent been dx with ms) But im going through the motions.
I have been taking vitamin b-12 to see if it is a b-12 deficiency....
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sahsh, curious.. are you saying you do associate b-vits in general with tinnitus though?
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- 16208 Views
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Last post by jimmylegs
Thu Dec 10, 2015 8:27 pm
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- 0 Replies
- 2736 Views
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Last post by seeva
Thu Dec 03, 2015 11:37 pm
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Dr Rosedale diet
Replies: 2
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am65 » Thu Nov 26, 2015 9:14 pm
First post
Hello, I recently read this interview
and found it very appealing. I have been following the Paleo diet for the last one and a half years and I...
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You are right, there are different versions of Paleo diets that allow for foods that are not strictly paleo like yams and fruit.
What I find very...
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- 2985 Views
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Last post by am65
Sat Nov 28, 2015 2:29 am
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anyone on IVIG???
Replies: 7
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simone » Thu Dec 24, 2009 8:34 pm
First post
I have not been able to figure out how to post except for this, please excuse me if this is not ok.
Diagnosed 2-97
The main medication I have been...
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My neuro was on vacation. Heard about IVIG from the nurse for the first time. Wonder if it works for progressive MS.
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- 5200 Views
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Last post by Vivianne766
Mon Sep 21, 2015 12:15 pm
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Anyone taking 4-aminopyridine?
Replies: 11
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Lainie » Thu Dec 31, 2009 2:38 pm
First post
I just started this drug to help with mobility. It's not on the market yet, so I have to get it through a compounding pharmacy. Anyone else on it?
Last post
I started today with slow-release Fampyra 10mg twice a day, 30 minutes bevore meal.
Three years ago I tried 4-AP with shaky success.
- 11 Replies
- 5730 Views
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Last post by UWE59
Sat Sep 19, 2015 3:11 am
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You don't need to look anymore
Replies: 60
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Celeste485 » Tue Nov 12, 2013 8:04 pm
First post
Today, I was working on diet for my daughter and I started calculating her iron intake and I am sure her iron intake prior to the diagnosis was high...
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Celeste,
Did your daughter ever have MRIs or a lumbar puncture or any kind of relapse/event other than the optic neuritis?
Thanks,
zjac
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- 18423 Views
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Last post by zjac020
Sat Jun 20, 2015 10:25 am
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Blood test - what to test
Replies: 15
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mevrouw » Wed May 06, 2015 4:20 am
First post
Hello everybody,
I'm a 31-yo female and this is my first post after reading a lot.
I was taken into the hospital with numbness from my toes up to...
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Hi All,
I have made an initial list of what to test. Any comments are more than welcome !
Cheers.
CBC
Vitamin D (25(OH)D)
Vitamin B (B12) What...
- 15 Replies
- 6627 Views
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Last post by lyndacarol
Wed May 20, 2015 9:46 am
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My "regimen"
Replies: 21
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Fayruz » Tue Oct 09, 2012 11:33 am
First post
First let me state that I do not promote anything, sell anything etc. I started this topic to have a place to write everything and maybe get some...
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hi fayruz, nice to hear from you again! great news about your mri as well, and that you are making progress with the PCOS as well.
curious if you...
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- 9960 Views
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Last post by jimmylegs
Sat May 09, 2015 3:45 pm
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Tecfidera
Replies: 5
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momtoccb » Fri Mar 27, 2015 8:16 am
First post
I was just diagnosed yesterday and my MS specialist recommended tecfidera as first line therapy. Anyone with experience with this?
Last post
^^^ I didn't want to scare the OP, but yeah read that.
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- 2963 Views
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Last post by Youarethecure
Sun Mar 29, 2015 10:25 am
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RE ANHINTL INTERVIE WITH LINDA BLOOM
Replies: 2
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seeva » Fri Feb 20, 2015 6:53 pm
First post
Frends please read LINDA BLOOM storey how shover cmd m.s relapses
read
regards
seeva
Last post
Dear friend Ciures thanks for your coments. what information i have received from my m.s friends i just pass on to our TSM friends. Sorry I canot...
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- 2489 Views
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Last post by seeva
Mon Feb 23, 2015 2:01 am
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Helminthic Therapy
Replies: 1
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Alexandra » Sun Feb 22, 2015 12:08 am
First post
Dear All,
I am on Gylenia since September 2014 and I would like to start the Helminthic Therapy but I am worried that since I am already under an...
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Have you tried asking the makers of Gylenia? if they come back with no help (chances are they would say they are against it I think). Try asking...
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- 2458 Views
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Last post by CureOrBust
Sun Feb 22, 2015 2:19 am
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NEED HELP WITH MY TREATMENT.PLS READ ME!
Replies: 8
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SARABAND » Wed Nov 26, 2014 5:27 am
First post
Hello everybody. Thanks for reading my post.
I was diagnosed with MS 7 years ago after an optic neuritis which was treated with esteroids and fully...
Last post
Thanks Scott1. I will look into it
Youarethecure: Yes, I have looked other meds. In fact I was offered Copaxone and Avonex at the beginning, which I...
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- 3140 Views
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Last post by SARABAND
Sun Nov 30, 2014 12:13 pm
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Are we taking DMDs after CCSVI repair?
Replies: 5
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6mary6 » Tue Dec 10, 2013 10:06 am
First post
Sorry, I don't know what to do! I'm new here and I will read everything. My Neurologist doesn't even want to talk about CCSVI, and is pushing...
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Because pus taking Gilenya as a common side effect is herpes both gemital and cold soar oh an shingles, they label it viral infection under side...
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- 2979 Views
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Last post by sneaky2k
Fri Nov 14, 2014 7:53 pm
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My Regimen (ridiculous?)
Replies: 24
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Kronk » Thu Dec 05, 2013 10:58 pm
First post
UPDATED Regimen
My story... lost feeling in my legs xmas 2011, was referred to a Neurologist who said it was probably the flu... no joke... lost...
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Kronk, do you have an introduction thread? Or anything like that? I would love to hear your whole story.
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- 11311 Views
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Last post by Youarethecure
Sat Sep 13, 2014 10:52 am
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Regimen so far
Replies: 2
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Schoofness » Wed Sep 10, 2014 9:28 am
First post
Hi, I am new to this - was diagnosed last year - started Copaxone about a month ago now and am taking 5000 IU's of Vitamin D a day.
I don't know if...
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Do you work out and exercise as well?
That is VERY important along with medication, vitamins and proper dieting.
I mean think about it, our body...
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- 2183 Views
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Last post by Youarethecure
Wed Sep 10, 2014 3:32 pm
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Just started Aubagio
Replies: 5
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stamm » Sat Aug 09, 2014 5:39 am
First post
Hi,
I have been very lucky and have had very few relapses the last several years. In the past I was on Avonex and Copaxone but went off both for...
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Hi Stamm,
I'm a bloke in the UK and started Aubagio about 5 months ago. I have been fortunate not to have any headaches, though I do find myself...
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- 3009 Views
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Last post by exolon
Sun Aug 31, 2014 5:58 am
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Bloodwork - Zinc & Magnesium
Replies: 67
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pushingForward » Thu Jan 16, 2014 10:18 am
First post
Just got some blood work done to check my hormone levels and I asked to also include Zinc and Magnesium (based on many posts here). Here are the...
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OK, got the results of my latest test.
Magnesium is up slightly to 2.1 (from 2.0) mg/dL
Zinc is up to 84 (from 76) ug/dL
I am taking 200 mg of...
- 67 Replies
- 14600 Views
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Last post by pushingForward
Wed Jul 16, 2014 4:11 pm
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Estriol
Replies: 73
by
goofygirl » Thu Oct 11, 2007 1:23 pm
First post
Does anyone else use Estriol to treat their MS?
Last post
I think there is some confusion between estradiol and estiol. The prior is a very potent estrogen while estriol is very weak by comparison.
I have...
- 73 Replies
- 38372 Views
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Last post by Kronk
Tue Jun 24, 2014 7:44 am
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The Wahls Protocol
Replies: 2
by
ThisIsMA » Sun May 25, 2014 10:20 am
First post
Has anyone here tried the Wahls Protocol and found it helpful?
Dr. Terry Wahls is an MD in the USA with secondary progressive MS whose disease had...
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Hi, I follow a strict diet no diary,gluton,sugar, I have lots of green veggies and fruits and lots of supplements, I find I feel really fatigue if I...
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- 2840 Views
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Last post by victoriagrace1
Wed Jun 04, 2014 2:32 am
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how to rise blood pressure
Replies: 19
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leonardo » Sat Mar 08, 2014 2:34 am
First post
hello.
I have ms symptoms but I'm not diagnosed.
After starting healthy diet (low sat fat, low suggar) my normal blood pressure went from 120/80 to...
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My current regimen is:
Lysine 500mg - 2-3x
Olive leaf extract 750mg - 1x
Zinc 15mg - 1x
I noticed that the vessels on my arms are now often bulging...
- 19 Replies
- 5539 Views
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Last post by leonardo
Tue Mar 25, 2014 12:28 pm
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Blood test results
Replies: 8
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Barry » Thu Nov 15, 2012 10:34 am
First post
It makes sense to get a baseline on some things, so that's what I did. I'm using jimmylegs numbers that can be found on the site.
B12 - aim for 500...
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hey glad you are making progress!
nice job on the ferritin. 84 is an excellent level. it's great to see the zinc coming up while the iron comes...
- 8 Replies
- 4189 Views
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Last post by jimmylegs
Thu Feb 27, 2014 6:23 pm
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RE QUEENSLAND RESEARCHERS MAKE MAJOR BREAKTHROUGH IN TREATIN
Replies: 2
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seeva » Thu Feb 06, 2014 1:12 am
First post
HI FRIENDS The queensland research suggest that infection with EBV- virus- the most common cause of glandular fever- may be beneficial in treating...
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HI Frends I have contacted the principle research DR. PROF.RAJIV KHNNA twice on early February regarding clinical trails
hi reply was that he is the...
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- 2438 Views
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Last post by seeva
Tue Feb 25, 2014 2:58 am
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Last post by seeva
Tue Feb 25, 2014 2:41 am
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Is the paradigm about to change?
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Leonard » Mon Feb 17, 2014 5:23 am
Neurologists around the world waking up!
A central role for mitochondrial health.
quote: 2. Development of new and existing pre-clinical models...
- 0 Replies
- 2138 Views
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Last post by Leonard
Mon Feb 17, 2014 5:23 am
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Starting Rebif..and an anti-depressant?
Replies: 6
by
LibbyA » Tue Jan 28, 2014 10:23 am
First post
Dear All: I was just diagnosed and my neurologist is starting me on Rebif. I am worried about the side effects, mainly the depression/anxiety. A girl...
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Depression is one the side effects listed for Rebif. Best to understand side effects of any drug you take.
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- 2897 Views
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Last post by want2bike
Sun Feb 02, 2014 6:57 am
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Too much sleep....
Replies: 5
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mpalla » Fri Nov 22, 2013 10:13 pm
First post
I sleep away too much. I am in the midst of another relapse. Steroids...blah blah. I know I need sleep I get it but 12 hrs a day split up?? What do...
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You're correct NHE,
The ADP needs the Q10 to gather the phosphate,
If Glyceraldehyde-3-phosphate has been disabled then it won't happen.
Regards
- 5 Replies
- 3100 Views
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Last post by Scott1
Sat Jan 25, 2014 1:22 am
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Gibbledygook's stents
Replies: 125
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gibbledygook » Sat Jan 09, 2010 8:43 am
First post
I had begun a diary on my post-stent experience in the CCSVI section, but I'll be jiggered if I can find it now!!!
It's been 6 months since the...
Last post
latest chart update shows that I have remained largely stable.
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Last post by gibbledygook
Tue Jan 21, 2014 5:44 am
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A GREAT study to look up, really worth it
Replies: 1
by
msmything » Tue Jan 07, 2014 12:21 pm
First post
I've had this study around for a while, then finally picked it up and REALLY read it.
I have a TENS unit, I got it in order to cut down on pain meds...
Last post
I've had this study around for a while, then finally picked it up and REALLY read it.
I have a TENS unit, I got it in order to cut down on pain meds...
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- 2204 Views
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Last post by lyndacarol
Tue Jan 07, 2014 3:09 pm
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Anybody on Fingolimod?
Replies: 1
by
MHP » Tue Aug 03, 2010 2:06 pm
First post
Anybody on Fingolimod?
improvements? side effects?
would appreciate any feedback!
thanks
Last post
I am! I've only been on it two weeks, and only been diagnosed for a month, so it's hard to say yet how its disease-modifying effects are working.
No...
- 1 Replies
- 3105 Views
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Last post by amberfer
Thu Dec 19, 2013 7:54 pm
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B vitamins
Replies: 9
by
erimus » Wed Mar 13, 2013 9:26 am
First post
I've been looking into vitamins etc to make sure I'm not missing anything that could help my MS. This site has been really helpful in my background...
Last post
I take B12 orally at my neuro's suggestion. It hurts my mouth if I take it daily, so I take it twice a week. But she made it clear that my diagnosis...
- 9 Replies
- 3912 Views
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Last post by amberfer
Thu Dec 19, 2013 7:40 pm
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Supplements, diet, and optic neuritis
Replies: 11
by
Pinkalicious » Wed Jan 02, 2013 9:28 pm
First post
Hi there,
I'm hoping to get some feedback on my regime. I'm battling optic neuritis (original flare was in March 2012 with improvement but not full...
Last post
Interesting that you posted resveratrol as it is frequently used by bodybuilders coming off of an anabolic steroid cycle. It helps to stabilize...
- 11 Replies
- 6715 Views
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Last post by Kronk
Fri Dec 06, 2013 10:30 am
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Blood work
Replies: 11
by
WarmOutToday » Sat Sep 07, 2013 7:17 pm
First post
haven't been on here since I was diagnosed. i've migrated across the country to a place with better sun.
finally found a doctor to test what I want...
Last post
if you copy and paste the link on key nutrients below into your browser, the first post on that thread contains some potentially useful reading. feel...
- 11 Replies
- 3948 Views
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Last post by jimmylegs
Sat Nov 16, 2013 10:53 am
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Medical MJ and Miami/keys
Replies: 2
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jennykash » Thu Jun 13, 2013 6:21 pm
First post
My hubby is a regular medicinal user for spasms and pain. we are taking a trip this winter to the Florida keys via miami where it is not legalized...
Last post
Bump...
- 2 Replies
- 2263 Views
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Last post by jennykash
Wed Nov 06, 2013 8:07 pm
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Recent Diagnosis of CIS - going down hookworm route with AIT
Replies: 60
by
mrbarlow » Sun Jan 02, 2011 5:42 am
First post
Hi
In November I had an acute bout of optic neuritis. Prior to this had suffered on and off paraethesia in my feet. Typically fobbed off by my clown...
Last post
Thought I'd do an update as its almost 3 years since my attack of acute optic neuritis and 21 months since I started Hookworm Therapy. Its almost 4...
- 60 Replies
- 19911 Views
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Last post by mrbarlow
Sun Oct 20, 2013 1:40 am
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Overwhelmed with supplement info!!! Advice please??
Replies: 39
by
Stabilo » Tue Oct 26, 2010 10:26 pm
First post
Hi All,
I was diagnosed with rrms June of last year (2009) I have recently started Copaxone (3 weeks) and all my neuro ever suggested for me was...
Last post
I am a holistically oreinted medical doctor and have successfully helped many MS patients. When it comes to supplements my approach is very...
- 39 Replies
- 9882 Views
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Last post by mikeydoc
Sat Sep 21, 2013 1:02 pm
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My Regimen
Replies: 2
by
mrsmac2775 » Fri Aug 02, 2013 11:15 pm
First post
After reading several of others' posts, I feel disheartened. I am on a ton of medication for multiple symptoms whereas others are taking next to...
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hi and welcome :) that is so much stuff! reminds me of my uncle's box of drugs - every problem on his list could be addressed at least in part by...
- 2 Replies
- 2102 Views
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Last post by jimmylegs
Sun Aug 04, 2013 3:47 pm
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Fenofibrate/Tricor diary and AO realignment (RRMS)
Replies: 19
by
Anonymoose » Thu Apr 11, 2013 2:41 pm
First post
Since I can't get a CRH inhibitor, I decided to go further upstream in my attempts to stop the hpa-axis activation. My clonidine experiment leads me...
Last post
Winding this up properly...
I developed a low grade (100-101) fever, extreme fatigue, and severe body aches (no buzzing...strange) on the evening of...
- 19 Replies
- 6477 Views
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Last post by Anonymoose
Fri Jul 19, 2013 8:26 am
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Lower Back Pain
Replies: 12
by
sunnydelilah » Fri Feb 18, 2005 11:20 am
First post
I started using Curcumin (extract of tumeric) and after a couple of months have gotten rid of all the pain. No more chiropratic visits and no more...
Last post
Thanks NHE,
That's alot of Turmeric, I think I'll add a supplement too. And thanks for the links!
- 12 Replies
- 6814 Views
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Last post by dlynn
Wed Jul 10, 2013 12:52 pm
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EDSS IMPROVEMENT from any REGIMEN?? -- FROM, TOO
Replies: 44
by
viper498 » Sat Jan 21, 2006 8:55 am
First post
I was just curious if anyone would kindly post the following information:
MS Stage (RR, SP, PP, B) =
Regimen =
Length of Time on Regimen =...
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I agree, JL, it is fascinating, but I would guess my nutrient status was quite good and as for an infection, I was just in he wrong place at the...
- 44 Replies
- 17853 Views
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Last post by SarahLonglands
Sat Jul 06, 2013 9:55 am
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Padma basic
Replies: 17
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Jimpsull » Thu Jun 13, 2013 8:59 pm
First post
Thinking of adding Padma basic to my regimen. Any thoughts on whether it is likely to interact with:
Circumin
Fish oil
Evening primrose oil
Walnuts...
Last post
on the interconnections between PUFA and zinc status:
In chronic fatigue syndrome, the decreased levels of omega-3 poly-unsaturated fatty acids are...
- 17 Replies
- 6287 Views
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Last post by jimmylegs
Mon Jul 01, 2013 7:39 am
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Bowel Health - Cause and Effect
Replies: 28
by
JilPhones » Sun Dec 14, 2008 5:21 am
First post
For me, from when I was diagnosed six years ago I was convinced of the link to my bowel.
This has been confirmed without any doubt when after a...
Last post
@ daisy re Holland & barrett
found this uk shop, 'revital health place' - product listings look great
- 28 Replies
- 11231 Views
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Last post by jimmylegs
Thu Jun 20, 2013 5:11 pm
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Research research research
Replies: 7
by
KatWoman63 » Sat Jun 01, 2013 5:13 pm
First post
No offense to anyone here, but I'm inclined to take Dr. Klenners advice with a grain of salt. I looked him up as recommended and the biggest and...
Last post
the klenner protocol for ms is more relevant here. pretty kooky elements but some really good pieces in there too. and gaps (no vitamin D for...
- 7 Replies
- 2143 Views
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Last post by jimmylegs
Sat Jun 15, 2013 1:42 pm
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Inosine and neural growth
Replies: 20
by
CaliReader » Wed Feb 06, 2013 6:31 am
First post
Hi,
I'm surprised to report that there may be more to Inosine than just being the precursor to Uric acid.
I learned from this board that uric acid...
Last post
I will get them Friday. I know they didn't concern my doctor (she wants to see me about very low cholesterol) but that doesn't mean they may not be...
- 20 Replies
- 7270 Views
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Last post by Jimpsull
Wed Jun 12, 2013 9:56 pm
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Hyperbaric Oxygen Treatment??
by
KMG » Tue Jun 11, 2013 6:33 am
Has anyone had experience with HBOT to treat MS? I'm SPMS and post Tysabri cessation 2 years ago in rapid ambulation decline.
Thank you
- 0 Replies
- 1976 Views
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Last post by KMG
Tue Jun 11, 2013 6:33 am
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Curcumin research
Replies: 3
by
Jimpsull » Tue Jun 04, 2013 10:26 pm
First post
Enjoyed the above, but not exactly a scholarly article. Anyone see anything regarding curcumin's neuroprotective effects in a medical journal?
Last post
For what it's worth... Pretty much every morning I put about 1/3 tsp of tumeric, a couple shakes of black pepper, mix it up with a
splash of olive...
- 3 Replies
- 2266 Views
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Last post by Barry
Thu Jun 06, 2013 2:13 pm
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My ms regimen, thoughts?
Replies: 30
by
tmckenna » Tue Apr 24, 2012 8:04 pm
First post
Hello all, this is my first post, I'm a 30yr old male, I live in new zealand and I got diagnosed with ms exactly a year ago, it was terrifying in the...
Last post
i think you'll find the more you read about it, the more you'll appreciate zinc :) i certainly didn't know a thing about it a few yrs ago.
re the...
- 30 Replies
- 7711 Views
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Last post by jimmylegs
Wed Jun 05, 2013 3:47 am
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