Jacek Kosteki

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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BrendaReqier
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Post by BrendaReqier »

@Billmeik, sorry i didn't see your post earlier! I tell ya MS brain fog is a pain! I have difficulty following the posts and rely on my email notifications most times.
Yes sounds like we will be there at the same time. I know they're closed for the weekend, but I had an email yesterday for confirmation.
Let me know if you hear anything, I'll try to check my messages here. I tried to phone them but no luck (friend had the same trouble trying to call Germany from here) and I don't have skyp sp? yet. I just emailed. Where are you flying in from? you can pm me if you would rather. I'm coming from Wetern Canada
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Billmeik
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Post by Billmeik »

ya Im north of vancouver. No flight booked yet.
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alanbrowne
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Post by alanbrowne »

Well, my time has come.....
Flight to Katowice from the UK this evening then MRI tomorrow, should be liberated on Friday :D

Excited, nervous, it's going to be an emotional week I think.

Very best of luck to all others having the procedure around the world this week.....our time has come :D

Take care,
Alan
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Johnson
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Post by Johnson »

Best of luck alanbrowne! I hope you will look forward to a Brave New Life.

Don't forget the Tracking Thread. Smile.

Billmeik, We will be "in country" the same week, if different LZs. We might see each other on the plane. I haven't packed my parachute yet, but I will likely be flying on the 4th or 5th of June from YVR. Else, all the best.
My name is not really Johnson. MSed up since 1993
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caraboo
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poland

Post by caraboo »

Hi all,


For any of the ladies that have been treated by Dr K, do you have to be catheterised during and after procedure? I dont fancy that.


Caraboo
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girl69
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Post by girl69 »

Hi Caraboo ! I was just like you, not wanting the "catheter", especially after reading about every woman getting it automatically with Dr. Simka (with UTI in most cases after). So I was ready to fight them off :lol: and surprise surprise, maybe because it's still a small scale human organisation, they didn't even mention it !!! There a plenty of nurses, they come in a flash when you ring and help you the old fashioned way : bedpan ! No UTI, no pain, no embarassing procedure, YEYE and VIVA KOSTECKI ! :wink:

So, don't worry and good luck !
Michelle
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caraboo
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Poland

Post by caraboo »

Hi Michelle,


Thankyou so much for putting my mind at rest. It was really bothering
me as like you I did n, cant waitot want a uti. Go on 23rd May :D :D :D


Take care
Caraboo
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mila77
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Post by mila77 »

girl69 wrote:Hi Caraboo ! I was just like you, not wanting the "catheter", especially after reading about every woman getting it automatically with Dr. Simka (with UTI in most cases after).
Michelle it is not true at all. At Euromedic thay always ask if you want the catheter or not. I didn't want and I didn't get it. It was not a problem for them.

Mila
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girl69
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Post by girl69 »

I was just repeating what people had written on this forum, glad to hear that you did have a choice !

Michelle
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1_sindy
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Post by 1_sindy »

We are wishing you all the best of luck in poland, and a safe trip ,hope to hear from you all when you are done .Sindy
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Drury
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Post by Drury »

Good luck all going to Poland!

Thank you Alan for all your kind help.

Drury
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vivavie
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Post by vivavie »

I'm making my coming out... I have been liberated by Doc K in Tychy on April 25th. Celebrating two weeks, last shot Clexane yesterday night!!!

We stayed in Poland, sightseeing for 8 days after the procedure. Kate was a great help so was Alex (taxi driver). Visited Pszcpyna, Auschwitz et Krakow.

Thank you Alan from England for the tribute about Dr Kostecki, all true and more.

I sure was not received the same way when I saw my GP last thursday... He was pissed at me (I could not care less). He's point being I made him responsable for my health with procedure and medication he did not agreed with??? Complicated (sorry for my English) he says that in Canada they prescribe Plavix for a YEAR after stenting?!? Dr K prescribes it for 6 weeks only and aspirin (150mg) rest if my life. Here pharmacist : aspirin 80 mg only.
My doc would prefer to die than to put the request for a Doppler follow up (K. ask after 1 month) same with meds.

I am a bit at lost here but for you Canadians next to go I would suggest:
Make sure you get ALL the meds prescribe IN Poland. (Not very expensive anyway)

For the women, euhh, ok guys skip the next few lines...
2 days before angio, when I start aspirin and plavix, I stated bleeding lightly but it did not STOP for 14 days!!!! I am 46 and was not schedule for my period until my return home. did not pack... No tampax in Tychy only the stuff you have to insert bare finger... (no carton or plastic device) and I have allergic reaction to pads. Because I was bleeding I was not allow to stand up for 24hrs (normally 6hrs). Fortunately since I was the only girl (Alan and Kenneth were at the same time) I had a big nice room all to myself!!!!
When sick, 1st thing to learn is humility! (been sick a long time cancer + ms and still have a problem with that one...)
I could not found some Iron supplement even in Krakow.

1st time on a forum, will be back...
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BrendaReqier
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Post by BrendaReqier »

Vivavie congratultion!!! How do you feel?

I am going June 5th, and we are also staying for a week to site see since it is our first time in Europe. I'm excited to see all the positive reports, and it looks as though some of us will be in Poland at the same time!

I still worry that I didn't get a dx of CCVI first, not wanting to waste money on a test that will be done again in Poland. So, I'm trying hard to stay positive and just look forward to the trip. Although, the long flight from Calgary to Frankfurt I'm not looking forward too! (I think 9 1/2 hours) I hope I can sleep through most of it.

I had a disappointing apt. with my GP on Sat. and have to see him again tomorrow and I understand what you mean when you say you really don't care what he says about this topic at this point. I heard that the blood thinners were short term, with asprin afterwards which is over the counter.

Did you have to make an appointment to go back for follow up with Dr. K?
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hale
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Post by hale »

THIS IS FOR LADIES ONLY PLEASE

Oh, oh, so you start blood thinners BEFORE the procedure? Darn, I don't want to be in your boat :oops:
The humiliation part aside, he still does the procedure right? What do you do during the procedure, use pads or tampons? I hate tampons and never use them.

Thanks for the info.
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ndwannabe
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Post by ndwannabe »

Vivavie, thank you for posting and the update!

All this is invaluable information!

And to repeat the others - how are you feeling MS-wise?

P.S. We need a private forum here - "For Ladies Only". Who is the admin on this forum? I wonder if we can kindly ask him / her to arrange something like that...
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