Aubagio - side effects
Aubagio - side effects
after taking aubagio for only 5 weeks my hair has been falling out for the last 3 months and shows no signs of stopping.
I really dont know whats going on - ive refused any additional medication until this stops. Neither of my doctors both men even
mentioned this as a side effect and to be honest if they had i probably would not have opted for this. I am feeling a little like
a guinea pig!
I stopped Gilenya in March as my bloods dropped too low but it worked awesome for me and i was 10 years on Rebif before that
My hair loss started 2 weeks in along with other symptoms - so i stopped but my foot is still tingling and my hair is worse than ever
3 months later
Has anyone got any advice on when this will slow down and end please
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Re: Aubagio - side effects
Hello Paddi, and welcome!Paddi wrote:hi and help
after taking aubagio for only 5 weeks my hair has been falling out for the last 3 months and shows no signs of stopping.
I really dont know whats going on - ive refused any additional medication until this stops. Neither of my doctors both men even
mentioned this as a side effect and to be honest if they had i probably would not have opted for this. I am feeling a little like
a guinea pig!
I stopped Gilenya in March as my bloods dropped too low but it worked awesome for me and i was 10 years on Rebif before that
My hair loss started 2 weeks in along with other symptoms - so i stopped but my foot is still tingling and my hair is worse than ever
3 months later
Has anyone got any advice on when this will slow down and end please
If you haven't found it already, there's a whole separate sub-forum on each of the MS meds, including one on Aubagio. Here's a link to a 3 page thread in that forum concerning hair loss. I hope it addresses your concerns!
http://www.thisisms.com/forum/aubagio-t ... 22296.html
Good luck!
Re: Aubagio - side effects
cheers
Re: Aubagio - side effects
Have you read the prescribing information for Aubagio?
http://products.sanofi.us/aubagio/aubagio.pdf
It looks like a pretty toxic drug with a lot of side effects and not a great deal of benefit according to the following two data plots. If you're having problems with the drug, then you might wish to discuss alternatives with your neurologist.
Re: Aubagio - side effects
Re: Aubagio - side effects
I have been on Aubagio since 2012 and have nothing but wonderful things to say about the treatment. I did "shed" my hair and at the time thought I would go bald, but I didn't. It thinned enough that I had to adjust my favorite baseball cap because it had become too large. However, it started growing back within 4 months. All my 52 years of life at that point, I had fine straight hair. I now have a beautiful full thick head of soft curly hair...not kinky curly...but as my hairdresser says...it's the kind of curls people pay money for. I did supplement with Biotin 5000mcg a day when my hair started falling out but I don't know if that really had anything to do with it...it's just what I did on my own accord. I have not had any flares since beginning Aubagio and all my subsequent MRI's have shown no new lesions or progression. With this awful disease, sometimes we have to weigh the risks and benefits. For me, it was the right choice. I originally started on Copaxone back when it was still a daily injection and had a new enhancing lesion within a year. I'll take my change in hair style over another flare any day.
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