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tld723
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Location: hudson valley ny
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Hello

Post by tld723 »

Hello! I just wanted to introduce myself. I am 45 y/o chicklet recently diagnosed with RRMS. I've probably had it for quite a while.

My primary symptoms are numbness in my feet and legs and left hand, I am as clumsy as they come, and the fatigue has been ruthless.

I am currently taking Prednisone and I actually for the first time in I don't know how long feel wide awake past 2:30 in the afternoon.

Thanks for this wonderful site, and for having me:)

Tami
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jimmylegs
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Post by jimmylegs »

welcome to TIMS, tami!
active members shape site content. if there is a problem, speak up!
use the report button to flag problematic post content to volunteer moderators' attention.
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Johnnymac
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Post by Johnnymac »

HI Tami! I know what you're talking about. When my wife was first diagnosed they put her on a 5 day intravenous steroid treatment and it was amazing how much it helped as she was having a pretty bad exacerbation....glad you're feeling better, the little things are worth celebrating!
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SandyK
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Post by SandyK »

Hi tld723. Steroids are a necessary evil in this disease. I have trouble when I'm on Prednisone at less than 10 mg. I feel really sad and hopeless. Thankfully, that feeling goes away. Welcome to the party!
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Vhoenecke
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Post by Vhoenecke »

My Neuro says that steroids can cause really bad affects to the body later on. I chose not to go that route maybe I was wrong. I found out about Modafinil from a cousin-in-law with SPMS, I have RRMS but have crazy bad fatique. This is a drug for people with Narcolepsy(SP?) It seems to really work for me, keeps me awake without that hangover feeling. It is a non-addicting drug as well. Just an FYI not trying to be a drug pusher or anything.
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SandyK
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Post by SandyK »

Vhoenecke, there is no wrong choice in this game. I don't have fatigue so that's not a drug I ever heard of. As long as you do what works for you you're doing perfect!
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