For those who have gone/are going to Poland

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
Guest
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Post by Guest »

Johnson wrote:You can always hit the south of France for the Vendange. Red wine interferes with iron absorption, you know... (I was so pleased to learn that! And coffee too!) A nice bottle of Macon would do the trick for a celebration.
That place is heaven on earth itself. We did some serious wine tasting while staying in St.Tropez. Unfortunately, since vertigo took over my life, I’ve had to stay away from all natural iron deposit absorbers, except coffee.
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Johnson
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Post by Johnson »

Guest wrote:
Johnson wrote:You can always hit the south of France for the Vendange. Red wine interferes with iron absorption, you know... (I was so pleased to learn that! And coffee too!) A nice bottle of Macon would do the trick for a celebration.
That place is heaven on earth itself. We did some serious wine tasting while staying in St.Tropez. Unfortunately, since vertigo took over my life, I’ve had to stay away from all natural iron deposit absorbers, except coffee.
I'm straying off-topic, sorry, but I still take red wine regularly - despite my own vertigo.

I was just looking at Google Earth at Vergisson, where I picked grapes one autumn. It is an enchanting area.

I'm off to look up Katowice on Google Earth. It makes me dizzy.
My name is not really Johnson. MSed up since 1993
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Post by Guest »

I still take red wine regularly - despite my own vertigo.
I'm jealous. :cry:
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cervin
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Reply from Dr. Simka

Post by cervin »

i heard from dr. Simka in the middle of December. i'm on the waiting list for May 2010!
Hip-hip Hooray!!
If i could jump up and down- i would!
-ceci
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Post by Guest »

cervin

Great news! Congratulations! :D
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Dovechick
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Poland

Post by Dovechick »

Great news Cervin.
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
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greenandchic
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Post by greenandchic »

I am on the waiting list for December 2010!

My only question is, do I get the ultrasound done here to even make sure I have CCSVI or do I wait until I go to Poland?
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Dovechick
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to Greenchick from Dovechick

Post by Dovechick »

Hi Greenchick,
In my opinion if you have MS you are more of less certain to have stenoses or some malformation of valves... The problem with having the ultrasounds done in this country is that the operators need to be trained to see.
My daughter is going to have the tests done in Poland...
I suggest you read all about CCSVI and see if you can identify with it yourself, another thing you might try is Inclined Bed Therapy, it is should help MS symptoms by improving cirulation. See here for instructions.
http://www.thisisms.com/ftopict-8535.html
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
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greenandchic
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Post by greenandchic »

Thanks Dovechick!

I was concerned that the "regular" ultrasound techs may not be trained to see unless I get it done at Stanford.

So I guess everything is done in Poland including the actual diagnosis...

Thanks!
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ozarkcanoer
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Post by ozarkcanoer »

Hi greenandchic,

I think the doctors in Poland are probably second only to Zamboni's team in diagnosing CCSVI, so you will be in good hands !! Dr Simka literally "wrote the book" on the doppler ultrasound procedure, LOL :

http://csvi-ms.net/en/content/how-perfo ... t-dr-simka

ozarkcanoer
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greenandchic
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Post by greenandchic »

Thanks for the link, ozarkcanoer!
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colmmc
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Post by colmmc »

Hi
A bit off topic but I didn't know where I should put it.A friend has just emailed me asking why are we going to Poland is Dr Zamboni not doing it in Italy?Is he still doing it?

colmmc
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Not at the moment

Post by Dovechick »

colmmc wrote:Hi
A bit off topic but I didn't know where I should put it.A friend has just emailed me asking why are we going to Poland is Dr Zamboni not doing it in Italy?Is he still doing it?

colmmc
From what I gather from information posted by others he is not doing it at the moment either. Something to do with funding and clinical trials, I think.
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
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Jaguar
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Post by Jaguar »

My understanding is that Italy has a healthcare system similar to Canada's: you can't come to the country and pay for medical service - you have to be a part of the health system - i.e. you have a healthcare card
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