Florida Doctor??

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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DaisyGirl
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Florida Doctor??

Post by DaisyGirl »

Does anyone know the name of the doctor in Florida that is doing the CCSVI surgeries? Any info. would be greatly appreciated :o)

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laura383
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Post by laura383 »

Hi Daisy Girl,

There was a doctor in Florida doing Liberation but he got shut down. I know because I was one week away from treatment with him at the time.
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DaisyGirl
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Thanks

Post by DaisyGirl »

laura383 wrote:Hi Daisy Girl,

There was a doctor in Florida doing Liberation but he got shut down. I know because I was one week away from treatment with him at the time.

Thanks for the info. :o)
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Post by Cece »

Huh! I'd heard about the doc in FL but never heard he got shut down.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Vivianne766
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Post by Vivianne766 »

Yup. I was on his list too. I still am. His nurse said he's very determined about it. I don't know what he can do about it?
.... my heart is broken.
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laura383
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Post by laura383 »

I was crushed. But I snapped out of it in two days, sent letters to local Dr's. Got back a really negative response.

Then I decided I was in far too rough shape to be trying to find a local Dr right now. I decided to go out of the country and get Liberated. Then, hopefully feeling better, I could look for someone local for follow up care.

I'm going to New Delhi, waiting on visa right now.
Last edited by laura383 on Fri Jun 18, 2010 11:45 am, edited 1 time in total.
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belsadie
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Post by belsadie »

Laura,
What a shame about your having to go to India for treatment. Some day this episode in medical history will be right up there with the giving our GIs LSD- experiment!. What a travesty......
Good Luck in your travels and SUCCESS with liberation.Keep us posted
:D
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laura383
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Post by laura383 »

Hi belsadie,

Actually I'm kind of excited to go. Last June in 2009 I was at EDSS 1.0, but this June 2010 I am at EDSS 6.5 so I really can't afford to wait. And going to India sounds kind if neat.

It is easy to get the procedure in Europe but there are huge waits (I got my dates from Bulgaria, it is next February). Impossible in Canada, hard in US. Mexico is just gearing up. India doctors seem to have the experience, be cheap enough for those of us without insurance, and have no wait.

Anyway, I think it will be fun and you can bet I will post about it when I get back.
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